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SMA hat viele Gesichter – wir machen sie sichtbar. Spinale Muskelatrophie verändert das Leben, aber es definiert nicht, wer Du bist. Denn hinter jeder Diagnose stehen Menschen mit eigenen Geschichten, Zielen und einer eigenen Sicht aufs Leben. Face SMA, eine Initiative der Roche Pharma AG, ist eine Plattform für Information, Austausch und Mut. Wir klären auf, schaffen Perspektiven und geben Menschen mit SMA den Raum, ihre Erfahrungen selbst zu erzählen. 📣 Mein Normal ist anders als dein Normal.
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https://kurz.zdf.de/REf99/ Svenja (30) hat spinale Muskelatrophie, eine Form von Muskelschwund. Seit ihren Teenagerjahren sitzt sie im Rollstuhl. Vor knapp zehn Jahren lernt sie ihre große Liebe Benjamin kennen. 2019 heiraten die beiden. Heute leben sie gemeinsam mit ihrer dreijährigen Tochter im eigenen Haus. Svenja hat Wege gefunden, sich im Alltag frei und selbstständig zu bewegen: Waschmittel und Küchenmesser sind in Rollstuhlhöhe. Mithilfe eines speziellen Rollstuhlantriebs kann sie ihre To
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Heute ist der Internationale Tag der Menschen mit Behinderung. ❤️ Wie bei vielen Behinderungen gehören auch für Menschen mit spinaler Muskelatrophie Vorurteile zum Alltag. Wir haben unsere Community gefragt, welche Annahmen ihnen immer wieder begegnen. Teile deine Erfahrungen in den Kommentaren und folge uns bei @lebenmitsma, um mit Vorurteilen aufzuräumen! #FaceSMA #SMA #SMACommunityDay2025 #FaceSMACommunityDay #FaceSMACommunity #SMACommunity #LebenMitSMA #SpinaleMuskelatrophie #MehrAlsSMA #Le
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Kennedy's disease, also known as spinal and bulbar muscular atrophy, SBMA for short, like SMA, is a rare, genetic, neuromuscular disorder that is characterized by muscle weakness and wasting. Due to the similarities, SBMA is often misdiagnosed as SMA. One difference between the two is SBMA is typically slower in progression than SMA. And a third difference between the two is the time of onset. Where there is Type 4 SMA that has an onset in adulthood, SBMA is typically an adult-onset disorder occ
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